Interstate Data Exchange

The Louisiana Tumor Registry (LTR) is often asked if its data includes cancer cases diagnosed and/or treated at out-of-state facilities. The answer is yes.

The LTR currently has interstate data exchange agreements in place with population-based cancer registries in 43 states and 4 US territories. Cancer registries in these states and territories collect Louisiana cancer cases from medical records and transmit this data to the LTR twice a year. If Louisiana cancer cases are not identified from their casefinding efforts, these registries usually notify the LTR accordingly by email.

The NAACCR Interstate Data Exchange Agreement was signed by LTR in September 2014, which increased its reach dramatically. You can find this agreement and a map of the participating states and territories at this link: https://www.naaccr.org/national-interstate-data-exchange-agreement/

Before signing the NAACCR Interstate Data Exchange Agreement, LTR signed individual agreements with each of these states in the following years:

  • 2006: Arkansas, California, Georgia, South Carolina, Texas, Virginia, Washington
  • 2010: Tennessee
  • 2011: Alabama, Colorado, Michigan, Mississippi, North Carolina
  • 2012: Oklahoma
  • 2013: Kentucky
  • 2014: Ohio
  • 2016: Missouri*

*Has not signed the NAACCR Interstate Data Exchange Agreement.

Here is an example of how this works:

A woman in Lake Charles, LA detects a lump in her breast.  She immediately thinks it is cancer and decides to go to a well-known cancer center in Texas for diagnosis and treatment. Unfortunately, the woman is correct; a biopsy is performed at the cancer center that confirms her suspicion.

The cancer registrars identify this woman’s breast cancer as a reportable case, but realize that her address at the time of her diagnosis is in Lake Charles, LA. Thus, the cancer registrars submit this case to the Texas Cancer Registry so that it can be transmitted to the Louisiana Tumor Registry.